Who’s struggling?

poggle said:
@alpacasqueak Sorry for the rushed message (browsing while running the baby's bath), but I heard of this the other day while researching a referral my husband needs: Your choices in the NHS

I've not looked too far into it myself yet but thought it could maybe be of use to you?
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Thanks a lot for that, really helpful! (And hope little one enjoyed the bath!) I’m always offered choices for Covid jabs etc but nothing with this when I went to book online, why I phoned them confused. I’m going to ring and sort it tomoz and I’ll definitely mention my choice of hospital (not that one!). Thanks :)
 
Good luck and it might be worth contacting your old consultant …..he knows you and did say get in touch with him….!
 
Sorry your dad has had to make this choice for your mum.
It’s a tough one but in the end will benefit both.
Your mum will get the 24 hour care she needs and with the chance to relax your dad will cope better.
He’ll be able to visit often and probably help with things like feeding as well as being with your mum.
Dementia is one of the cruellest illnesses I know.
Holding you all in my heart ♥️
 
Merab's Slave said:
Sorry your dad has had to make this choice for your mum.
It’s a tough one but in the end will benefit both.
Your mum will get the 24 hour care she needs and with the chance to relax your dad will cope better.
He’ll be able to visit often and probably help with things like feeding as well as being with your mum.
Dementia is one of the cruellest illnesses I know.
Holding you all in my heart ♥️
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Thank you so much. Yes it will definitely benefit both of them. So sad though.
 
weepweeps said:
Thank you so much. Yes it will definitely benefit both of them. So sad though.
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It is sad. My mother had to go into a nursing home following a severe stroke. It wasn’t what my dad wanted but he realised he couldn’t cope, even with a care package.
She went into a wonderful place, had excellent care for nearly 2 years before she died.
Dad went in almost daily and did amazingly well.
It was a difficult decision for him but so right for them both.
 
My funny turns and seizures are getting bad again. I went for a meal with my parents at dinner time and had one on the way home so have been in bed. Every time I catch a small break from them and think they’ve gone away, I get one. Also, my anxiety is at its worst again. I’m worrying about everything and am feeling throughly fed up 😞
 
Claire W said:
My funny turns and seizures are getting bad again. I went for a meal with my parents at dinner time and had one on the way home so have been in bed. Every time I catch a small break from them and think they’ve gone away, I get one. Also, my anxiety is at its worst again. I’m worrying about everything and am feeling throughly fed up 😞
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I'm really sorry to hear that Claire,sending you hugs xx
 
Claire W said:
My funny turns and seizures are getting bad again. I went for a meal with my parents at dinner time and had one on the way home so have been in bed. Every time I catch a small break from them and think they’ve gone away, I get one. Also, my anxiety is at its worst again. I’m worrying about everything and am feeling throughly fed up 😞
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I’m sorry. Hope you feel better now.
 
Claire W said:
My funny turns and seizures are getting bad again. I went for a meal with my parents at dinner time and had one on the way home so have been in bed. Every time I catch a small break from them and think they’ve gone away, I get one. Also, my anxiety is at its worst again. I’m worrying about everything and am feeling throughly fed up 😞
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Massive hugs from me and my boys, it must be awful for you Claire xx
 
I’m just so tired :( it seems to come and go in flare ups. At the moment I have about an hour of energy when I wake up before the fatigue and fog kicks in and after that everything just becomes so much harder for the day. Sleep doesn’t feel restful and every day things just take so much out of me. There’s so many people I just haven’t gotten back to even because I’m just too tired. Googled about it a lot and came across chronic fatigue syndrome on the nhs site and I have at least 80% of the symptoms listed which can’t be good, been meaning to go to the doctor about it but the thought of going drains my battery as well. I feel really down on myself when my big accomplishment for the week is cleaning the piggies out and managing to go shopping, it just makes no sense :(
 
Rivervixen said:
I’m just so tired :( it seems to come and go in flare ups. At the moment I have about an hour of energy when I wake up before the fatigue and fog kicks in and after that everything just becomes so much harder for the day. Sleep doesn’t feel restful and every day things just take so much out of me. There’s so many people I just haven’t gotten back to even because I’m just too tired. Googled about it a lot and came across chronic fatigue syndrome on the nhs site and I have at least 80% of the symptoms listed which can’t be good, been meaning to go to the doctor about it but the thought of going drains my battery as well. I feel really down on myself when my big accomplishment for the week is cleaning the piggies out and managing to go shopping, it just makes no sense :(
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Every single accomplishment is a milestone.
Don't put yourself down for any of them.
If you achieved something then celebrate that.

And as hard as it is you deserve to see your GP and get a proper diagnosis as clearly this isn't normal.
Please try to make time for yourself to do this.
 
Claire W said:
Thank you. I feel better after a nap but still a bit ropey. I just feel so stressed out by my animals, the snow and my seizures 😞 x
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I am sorry you are struggling Claire.
It's funny how differently you present to the outside world I think.

I was actually going to send you a pm to say how wonderful it is to have you as part of this Forum.
You always post such kind and helpful messages, and are such an asset.
So now I am saying it publicly.
Today you made a difference in a good way.
Thank you for taking the time to be supportive and kind to others, even when you are struggling yourself.
 
Rivervixen said:
I’m just so tired :( it seems to come and go in flare ups. At the moment I have about an hour of energy when I wake up before the fatigue and fog kicks in and after that everything just becomes so much harder for the day. Sleep doesn’t feel restful and every day things just take so much out of me. There’s so many people I just haven’t gotten back to even because I’m just too tired. Googled about it a lot and came across chronic fatigue syndrome on the nhs site and I have at least 80% of the symptoms listed which can’t be good, been meaning to go to the doctor about it but the thought of going drains my battery as well. I feel really down on myself when my big accomplishment for the week is cleaning the piggies out and managing to go shopping, it just makes no sense :(
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I would recommend booking a blood test.I have felt the same for a long time and the blood test results came back that I'm low in vitamin b12 and vitamin d.I was prescribed folic acid which didn't work and have tried certain other things which just made me feel sick.Ive just started on some vit b12 tabs so hopefully they make some difference.Hope you're feeling better soon x
 
Swissgreys said:
Every single accomplishment is a milestone.
Don't put yourself down for any of them.
If you achieved something then celebrate that.

And as hard as it is you deserve to see your GP and get a proper diagnosis as clearly this isn't normal.
Please try to make time for yourself to do this.
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Thank you for your lovely response, you’re right in that accomplishments are still milestones and I will definitely go to the gp, been putting it off but I really do need to x
 
Gem789 said:
I would recommend booking a blood test.I have felt the same for a long time and the blood test results came back that I'm low in vitamin b12 and vitamin d.I was prescribed folic acid which didn't work and have tried certain other things which just made me feel sick.Ive just started on some vit b12 tabs so hopefully they make some difference.Hope you're feeling better soon x
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Will definitely ask for a blood test and get off to the gp as soon as I can get an appointment, I’ve had low folic acid levels a couple years back and the lady said something like she didn’t know how my hair wasn’t falling out from it or something… thank you 🤗 x
 
Ask for them to check your B12 levels too - as someone with chronically low B12 I get many of the same symptoms you describe when it's low and the difference it makes when the levels are corrected is incredible.
 
Lorcan said:
Ask for them to check your B12 levels too - as someone with chronically low B12 I get many of the same symptoms you describe when it's low and the difference it makes when the levels are corrected is incredible.
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Will remember to ask for this too thank you 🤗 something is definitely wrong somewhere, I’ve had flare ups of this before but I’ve never felt so tired and drained until this time around
 
The last time I was in psych hospital, it wasn't the only problem but it turned out my B12 levels were whack, and the doctors ordered the injections and tablets before mentioning it to any of us, it was that bad. Sounds daft with it only being a vitamin but we need it, and it makes a massive difference to me when it gets fixed.
 
Could you be low in iron? Years ago, my iron levels were through the floor and I was put on iron tablets and felt so much better, after feeling so tired that just getting out of bed was a massive achievement. Having 2 small boys didn't really help either.
 
Betsy said:
Could you be low in iron? Years ago, my iron levels were through the floor and I was put on iron tablets and felt so much better, after feeling so tired that just getting out of bed was a massive achievement. Having 2 small boys didn't really help either.
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Definitely a possibility as well, honestly at 25 I can’t believe how many things just don’t seem to work right in my body :( I’ll make sure to update this space when I’ve seen a gp. Will bring all of these suggestions up to see where we can go from the initial appointment. I understand where you’re coming from with the getting out of bed being a massive achievement when you’re so tired , it is to me at the minute as well! x
 
Swissgreys said:
I am sorry you are struggling Claire.
It's funny how differently you present to the outside world I think.

I was actually going to send you a pm to say how wonderful it is to have you as part of this Forum.
You always post such kind and helpful messages, and are such an asset.
So now I am saying it publicly.
Today you made a difference in a good way.
Thank you for taking the time to be supportive and kind to others, even when you are struggling yourself.
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Aw thank you so much. That’s a lovely thing to say ❤️ I don’t feel like I bring that much to the forum so you’ve made my day 🙂 x
 
I’m really worrying about the weather. It’s really icy here and I’m worried about my parents who both have mobility issues falling whenever they leave their bungalow and I keep reading that we’re expected more snow in the coming weeks. 😞 I thought now my animals are better, I could relax a little bit there’s always something to worry and stress over. Why am I like this? 😞
 
Claire W said:
Why am I like this?
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Anxiety.

I have been incredibly twitchy this past week. Quicker to annoy, my hands are misbehaving again, the goblins make noise that hurts the brain. Not headache, more like fog. This isn't their fault and I make sure that they don't know it's causing me a problem because they can't help it, but I don't like having to remind myself it's not their fault.

And it's anxiety too. I can't find my glasses, I've got so much going on, I've had phonecalls with people where I could swear I could hear a tone in their voice that's wrong. Do they not believe me? Do they think I'm not taking it seriously enough? Do they think I need to step back and look at the bigger picture? If it's any one of the above, I can't win. I do what I'm supposed to do when I'm supposed to do it but somehow it's still wrong. And if I'm mishearing it, there is no "tone" to the conversation? Well, hello again anxiety.

It's a menace, and it's not treated with the respect needed. Depression? "We're all sad sometimes." Lining up a fork with a placemat? "I'm so OCD!"
Anxiety? "Well everyone gets nervous. No big deal."
 
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