Chat Thread.

jenniferanneharris said:
Yes it is, both the pcos and the migraines are painful. I had an op a few years back to remove 2 large cysts that were causing issues, i have a number of small cysts on my ovaries that are uncomfortable- but they dont operate till they get a certain size. My ones that were operated on were i think 10cm and 7cm long.

Dose anyone else find that when you have an issue that people cant see- people dont understand your feeling rubbish every day? I struggle with that at times....
Click to expand...

God so you have to deal with them untill there a certain size?!? Jesus I bet thats agony!
I've never had a migraine but my grandad use to suffer with them and have to stay in a dark room?!

Oh god I know... If they can't see it they don't believe you... Having that issue with my hip problems, especially as they don't know what it is and all the results have come back normal! I have anxiety problems too which people don't understand either. If I had a broken leg they'd get it though..

Jen H said:
Hi! I'm struggling with my gp who put me on 25 mcg, too low by far, so I saw a specialist who raised it to 50, and I've been told it's a slow process. Not noticed much improvement and I'm awake now because of the pain in my feet. Glad to meet fellow sufferers (that doesn't sound nice ha ha! You know what I mean!). Sorry you're having a rotten time of it.
Click to expand...

Yeah it takes awhile! I was on 25 then 50 now 100! But it takes about a month to feel the effects really. Plus thyroid can drop or raise when your ill and stuff too so its even harder for them to know which is why we need so many blood tests regularly!
I got to the point where I was collapsing from exhaustion but still had to wait 3 months till they put me on anything!
 
jenniferanneharris said:
Yes it is, both the pcos and the migraines are painful. I had an op a few years back to remove 2 large cysts that were causing issues, i have a number of small cysts on my ovaries that are uncomfortable- but they dont operate till they get a certain size. My ones that were operated on were i think 10cm and 7cm long.

Dose anyone else find that when you have an issue that people cant see- people dont understand your feeling rubbish every day? I struggle with that at times....
Click to expand...
Ooh they must have been painful at that size! I don't know much about PCOS at all. You're absolutely right about people not understanding . I keep being advised to 'build up my strength'! I read a brilliant open letter about fatigue- it compared it to having ten spoons every day, and every time you do sthg that's one or two of your spoons gone (depending on the amount of energy needed). So if you've had a busy morning you've no spoons left by the end of the day. I can't remember why it was spoons (!) but I think it explains how our energy just goes and that's that.
 
  • Like
Reactions: A&T
I like spoons. Thats a really good example though, and literally how I feel! I'm out of spoons at the moment. I fell down the stairs earlier, that took a good amount of my spoons.
 
A&T said:
God so you have to deal with them untill there a certain size?!? Jesus I bet thats agony!
I've never had a migraine but my grandad use to suffer with them and have to stay in a dark room?!

Oh god I know... If they can't see it they don't believe you... Having that issue with my hip problems, especially as they don't know what it is and all the results have come back normal! I have anxiety problems too which people don't understand either. If I had a broken leg they'd get it though..



Yeah it takes awhile! I was on 25 then 50 now 100! But it takes about a month to feel the effects really. Plus thyroid can drop or raise when your ill and stuff too so its even harder for them to know which is why we need so many blood tests regularly!
I got to the point where I was collapsing from exhaustion but still had to wait 3 months till they put me on anything!
Click to expand...

Yes as i will always have cysts on my ovaries, i just have to wait and if i get bad pain like it was a few years ago will have ultrasounds and then measure the cysts and then they will monitor. But while the pain isnt "that" bad, just nagging - nothing much they can do. If they remove the cysts more come back- so will only operate if they get bad or particularly big.

Sounds like its so anoying for you not knowing "whats wrong". I think that can almost be worse...if you have a name - you at least have something. Bless you- i hope they find out soon! x

Jen H said:
Ooh they must have been painful at that size! I don't know much about PCOS at all. You're absolutely right about people not understanding . I keep being advised to 'build up my strength'! I read a brilliant open letter about fatigue- it compared it to having ten spoons every day, and every time you do sthg that's one or two of your spoons gone (depending on the amount of energy needed). So if you've had a busy morning you've no spoons left by the end of the day. I can't remember why it was spoons (!) but I think it explains how our energy just goes and that's that.
Click to expand...

Its so frustrating isnt it? If only it was that simple huh?
Good quote indeed! x
 
A&T said:
I like spoons. Thats a really good example though, and literally how I feel! I'm out of spoons at the moment. I fell down the stairs earlier, that took a good amount of my spoons.
Click to expand...
Oh no bless you, hope your okay? x
 
A&T said:
God so you have to deal with them untill there a certain size?!? Jesus I bet thats agony!
I've never had a migraine but my grandad use to suffer with them and have to stay in a dark room?!

Oh god I know... If they can't see it they don't believe you... Having that issue with my hip problems, especially as they don't know what it is and all the results have come back normal! I have anxiety problems too which people don't understand either. If I had a broken leg they'd get it though..



Yeah it takes awhile! I was on 25 then 50 now 100! But it takes about a month to feel the effects really. Plus thyroid can drop or raise when your ill and stuff too so its even harder for them to know which is why we need so many blood tests regularly!
I got to the point where I was collapsing from exhaustion but still had to wait 3 months till they put me on anything!
Click to expand...
I didn't know about it changing when we're ill! Nightmare! I've read loads about them not diagnosing it, and that so - called normal levels here are way too high. I just stopped functioning properly after a virus, then two months later was diagnosed. I suspect I've had mild hypothyroidism for years though, I've been to docs with loads of the symptoms but was told it was my age and stress! I'm quite angry that they let me get to this state. It doesn't sound like you're getting much help either! They seem to say ' yes its your thyroid' but not actually help to relieve the symptoms. I'm sorry about your anxiety, that's a horrid thing to deal with.
 
Jen H said:
I didn't know about it changing when we're ill! Nightmare! I've read loads about them not diagnosing it, and that so - called normal levels here are way too high. I just stopped functioning properly after a virus, then two months later was diagnosed. I suspect I've had mild hypothyroidism for years though, I've been to docs with loads of the symptoms but was told it was my age and stress! I'm quite angry that they let me get to this state. It doesn't sound like you're getting much help either! They seem to say ' yes its your thyroid' but not actually help to relieve the symptoms. I'm sorry about your anxiety, that's a horrid thing to deal with.
Click to expand...
So annoying they fobbed you off! Glad you now have a diagnosis. My mum goes for semi regular blood tests to check her levels- when she feels run down she gets a blood test to check if her meds need upping. Her levels often go up and down. x
 
jenniferanneharris said:
So annoying they fobbed you off! Glad you now have a diagnosis. My mum goes for semi regular blood tests to check her levels- when she feels run down she gets a blood test to check if her meds need upping. Her levels often go up and down. x
Click to expand...
At least I've got time off work with the piggies though! They're enjoying the extra hay throughout the day!
 
Jen H said:
At least I've got time off work with the piggies though! They're enjoying the extra hay throughout the day!
Click to expand...
Haha i bet. :P I love the time at home i have with Sweep at the moment and almost thankful in a way i have that after he lost Honor. Gotta find the positives as they say :).

I may try and lie down in a bit- see if i can get some sleep. I should do really.... although not that tired yet... x
 
jenniferanneharris said:
Yes as i will always have cysts on my ovaries, i just have to wait and if i get bad pain like it was a few years ago will have ultrasounds and then measure the cysts and then they will monitor. But while the pain isnt "that" bad, just nagging - nothing much they can do. If they remove the cysts more come back- so will only operate if they get bad or particularly big.

Sounds like its so anoying for you not knowing "whats wrong". I think that can almost be worse...if you have a name - you at least have something. Bless you- i hope they find out soon! x
Click to expand...

Gosh! It kinda makes sense though, you can't just keep having operations! So it makes sense to wait untill there big! Plus if there gunna come back anyway. Poor you :(! Sounds like were all falling apart haha.

I have a feeling it's fibromyalgia, but Thats hard to diagnose and I'm not a doctor, I wish I just had a name to call it! Like you said, its easier when u just have a diagnosis at least.

I'm okay..ish, I twisted my ankle and a table hit me in the chest which I was carrying downstairs. Just taken some painkillers though which will probably end up putting me asleep!

Jen H said:
I didn't know about it changing when we're ill! Nightmare! I've read loads about them not diagnosing it, and that so - called normal levels here are way too high. I just stopped functioning properly after a virus, then two months later was diagnosed. I suspect I've had mild hypothyroidism for years though, I've been to docs with loads of the symptoms but was told it was my age and stress! I'm quite angry that they let me get to this state. It doesn't sound like you're getting much help either! They seem to say ' yes its your thyroid' but not actually help to relieve the symptoms. I'm sorry about your anxiety, that's a horrid thing to deal with.
Click to expand...

Yeahh its like... When your ill and you feel around your neck below your ears its swollen, Thats your thyroid reacting to infection. Oh you have hypo? I have under active! Thats strange!
Well its better than it was but I'm not sure if I'm just gunna always feel like this now.. Or if my thyroid tablets still need putting up?! Its confusing!
 
jenniferanneharris said:
Haha i bet. :P I love the time at home i have with Sweep at the moment and almost thankful in a way i have that after he lost Honor. Gotta find the positives as they say :).

I may try and lie down in a bit- see if i can get some sleep. I should do really.... although not that tired yet... x
Click to expand...
Aw I know, poor little Sweep, and you of course . Yes I think I'll try again now, this chat has distracted me from the pain a bit so thank you. Night!
 
A&T said:
Gosh! It kinda makes sense though, you can't just keep having operations! So it makes sense to wait untill there big! Plus if there gunna come back anyway. Poor you :(! Sounds like were all falling apart haha.

I have a feeling it's fibromyalgia, but Thats hard to diagnose and I'm not a doctor, I wish I just had a name to call it! Like you said, its easier when you just have a diagnosis at least.

I'm okay..ish, I twisted my ankle and a table hit me in the chest which I was carrying downstairs. Just taken some painkillers though which will probably end up putting me asleep!



Yeahh its like... When your ill and you feel around your neck below your ears its swollen, Thats your thyroid reacting to infection. Oh you have hypo? I have under active! Thats strange!
Well its better than it was but I'm not sure if I'm just gunna always feel like this now.. Or if my thyroid tablets still need putting up?! Its confusing!
Click to expand...

Bless you, i hope it dose get diagnosed soon. Bless you, i hope your not too stiff/ sore tomorrow ...bless you x
 
A&T said:
Gosh! It kinda makes sense though, you can't just keep having operations! So it makes sense to wait untill there big! Plus if there gunna come back anyway. Poor you :(! Sounds like were all falling apart haha.

I have a feeling it's fibromyalgia, but Thats hard to diagnose and I'm not a doctor, I wish I just had a name to call it! Like you said, its easier when you just have a diagnosis at least.

I'm okay..ish, I twisted my ankle and a table hit me in the chest which I was carrying downstairs. Just taken some painkillers though which will probably end up putting me asleep!



Yeahh its like... When your ill and you feel around your neck below your ears its swollen, Thats your thyroid reacting to infection. Oh you have hypo? I have under active! Thats strange!
Well its better than it was but I'm not sure if I'm just gunna always feel like this now.. Or if my thyroid tablets still need putting up?! Its confusing!
Click to expand...
Yes hypo is underactive isn't it? I always feel dazed and when I move it's like wading through mud! Sorry about your ankle - sounds painful. My aunty has fibromyalgia and they only diagnose it by eliminating everything else! So it might take a while. Poor you, I hope it isn't that, it's a nasty disease.
 
Haha pretty much fell asleep straight after I posted that. Painkillers always put me to sleep!

Jen H said:
Yes hypo is underactive isn't it? I always feel dazed and when I move it's like wading through mud! Sorry about your ankle - sounds painful. My aunty has fibromyalgia and they only diagnose it by eliminating everything else! So it might take a while. Poor you, I hope it isn't that, it's a nasty disease.
Click to expand...

Oh yeah! Sorry! Haha your right! I get confused between hypo and hyper which is pretty stupid of me really because 'hyper' kinda gives its away! Haha. Oh god! You still feel like that?! Thats how I felt before i started collapsing all over the place! I mean I feel tired all the time now still, and can pretty much sleep whenever I want (providing it's during the day haha) but the fatigue has gone mostly! Unless I'm late taking my tablet or forget?
How long have u been on them now? Do you take them at the same time everyday after food?
 
I'm reading with interest everything you are saying about thyroid problems. I have to have blood tests of my thyroid levels, soon. I was very very anaemic last year, and got to the stage where I would drive to work and just put my head on the steering wheel in the car park, not even having the energy to walk across the car park to my office. Things are much better now I am on high dose iron pills but I don't know how much more tired I am than normal people of my age with a job and small children and animals. I'm quite used to feeling like a zombie. Anaemia, heavy periods and low bone density (both of which I have) can be a symptom of thyroid problems but I don't know if its under or over active.

@jenniferanneharris I'm so sorry that you have PCOS, I know that is very painful and debilitating.
 
Hi everyone. Was a bad night for me. Was awake until 6am (i had a migraine come on) despite trying...i fell asleep and only just work up...ooops. Not feeling well today...always feel so sluggish after a migraine.
Hope everyone else is okay. I had so much energy last night...where has it gone?
Also woke up to fond dog had ripped up parcel card....not good...:-\ so now gotta find some tape so I can collect parcel tommor lol ...not a good start to the day.
 
Naughty puppy! My dog chewed up my lunch box last night! I made the mistake of leaving it with my work bag by the front door with my sandwiches in it ;)
 
Goth Mummy said:
Naughty puppy! My dog chewed up my lunch box last night! I made the mistake of leaving it with my work bag by the front door with my sandwiches in it ;)
Click to expand...
Oh dear. Naughty doggy.
You would have thought at age 9 he would have learnt to behave himself lol...silly boy. X
 
What kind of dog is he @jenniferanneharris ? I have a black lab, honestly I cant fault him, he is wonderful. We are training at the moment and he is so eager to please, always looking for his next instruction and wanting to do it right :wub:
 
Goth Mummy said:
What kind of dog is he @jenniferanneharris ? I have a black lab, honestly I cant fault him, he is wonderful. We are training at the moment and he is so eager to please, always looking for his next instruction and wanting to do it right :wub:
Click to expand...
Yellow lab. He's wonderful....but a bit of a minx... Still thinks he's a puppy lol.
 
You must log in or register to reply here.
Back
Top